As Easter morning came... it definitely was not something I was looking forward too. I missed the fact that she always thought of everyone on Easter, candy, baskets, toys, flowers... but the best thing was her cards, she always spent her time in the store looking for the funniest most inappropriate cards that would bring out the biggest laughter from everyone. I definitely do not want to spend another holiday without her...
In terms of how she is doing... for the most part it is the same.
She has been taken off of one of the medicines to stop her seizures, and they are scheduled to do an EEG and test to make sure they have stopped before they continue to run new tests and try new things to wake her up.
One new thing that we have started to do was the doctor gave authorization to us to cap her Trach so we can hear the noises she has been making... during last week she tried to say her name and then yesterday while I was washing her face and cleaning her up, it was a little uncomfortable for her and she said ouch twice!!!! It was amazing!!!!
Other than that... we are praying for her quick recovery so that she can continue to stay at the hospital that she is at for as long as she needs too.
Hope everyone is all doing great, good day and God bless!!!
Monday, April 25, 2011
Monday, April 18, 2011
8 weeks
Hi all,
I know it has been 2 weeks since my last post, but life has caught up with me ap bear with me on this one. Here is an update in what we know.
She is still in a minimal conscious state.
She is making some progress in terms of new things she is doing but not much.
Her therapies are all going great, but in order for them to be able to push harder needs to wake up.
After speaking with the doctors we were able to get an update on her condition and sort of figure out what we have to look forward too in the next coming weeks and for the long haul.
From what the doctor understands, she has been having what they call break-through seizures, which they believe is what has been inhibiting her from waking up.
Thus they have started her on 2 new medications to stop the seizures from happening and hopefully she will wake up.
She had an EEG and an MRI done last week and it appears that her swelling has gone sown and they are not concerned at all in terms of swelling.
The good news is that she will live a quality life, just not how she had planned on doing so.
Now Dr. Dougherty's program is 8 weeks, this coming Thursday will be week 3. If she does not wake or have significant leaps of improvement we have to start looking for new places to go for sub-acute and long-term care. We are hoping that since she is being given those medications to stop her seizures, that she will at least wake up and she will be able to stay for a few weeks longer to give her time to develop and make significant improvement.
I know my mom is going to be fine. Yes, it wont be like she is going to wake up and everything is going to be like it was before, but she is still here and going to be able to share and enrich her life as she has ours. I know I miss her like all of you do. Keep praying.
Good day, God Bless and Happy Easter.
I know it has been 2 weeks since my last post, but life has caught up with me ap bear with me on this one. Here is an update in what we know.
She is still in a minimal conscious state.
She is making some progress in terms of new things she is doing but not much.
Her therapies are all going great, but in order for them to be able to push harder needs to wake up.
After speaking with the doctors we were able to get an update on her condition and sort of figure out what we have to look forward too in the next coming weeks and for the long haul.
From what the doctor understands, she has been having what they call break-through seizures, which they believe is what has been inhibiting her from waking up.
Thus they have started her on 2 new medications to stop the seizures from happening and hopefully she will wake up.
She had an EEG and an MRI done last week and it appears that her swelling has gone sown and they are not concerned at all in terms of swelling.
The good news is that she will live a quality life, just not how she had planned on doing so.
Now Dr. Dougherty's program is 8 weeks, this coming Thursday will be week 3. If she does not wake or have significant leaps of improvement we have to start looking for new places to go for sub-acute and long-term care. We are hoping that since she is being given those medications to stop her seizures, that she will at least wake up and she will be able to stay for a few weeks longer to give her time to develop and make significant improvement.
I know my mom is going to be fine. Yes, it wont be like she is going to wake up and everything is going to be like it was before, but she is still here and going to be able to share and enrich her life as she has ours. I know I miss her like all of you do. Keep praying.
Good day, God Bless and Happy Easter.
Monday, April 4, 2011
slow and steady wins the race....
My mom is slowly and steadily improving. As I am looking for the biggest improvement with her everyday, there are small steps. In terms of her improvement, to me, her progress has plateaued. As I hope everyday that she is making huge leaps of improvement, we have to wait it out and see.
She is still in a Mid-level Conscious state.
Being in a new place, were still trying to get all the kinks worked out with the staff and get her back on a regime.
Today she starts her 6 day a week Physical Therapy (PT), Occupational Therapy (OT) and Speech Therapy (ST).
She is going to be stood up today, and hopefully that wakes her up!!!
PT comes in everyday, and depending on the day will work with her on a small or large level to get her moving again.
OT has started and is working to keep her hands open so she may get back to cutting hair in no time.
ST is going to work on having her follow simple commands, the first, swallowing her own secretions, once she can do that, she will be able to have the Trach cap put on and she could possibly start to talk and even go outside! And once outside.... we can bring BUDDY the puppy!!
Thats all for last week, enjoy this week and hopefully you all can go visit her sometime.
Good day and God bless.
She is still in a Mid-level Conscious state.
Being in a new place, were still trying to get all the kinks worked out with the staff and get her back on a regime.
Today she starts her 6 day a week Physical Therapy (PT), Occupational Therapy (OT) and Speech Therapy (ST).
She is going to be stood up today, and hopefully that wakes her up!!!
PT comes in everyday, and depending on the day will work with her on a small or large level to get her moving again.
OT has started and is working to keep her hands open so she may get back to cutting hair in no time.
ST is going to work on having her follow simple commands, the first, swallowing her own secretions, once she can do that, she will be able to have the Trach cap put on and she could possibly start to talk and even go outside! And once outside.... we can bring BUDDY the puppy!!
Thats all for last week, enjoy this week and hopefully you all can go visit her sometime.
Good day and God bless.
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